Featured Groups

All Groups (130)

  • 2018 PPMD Annual Conference

    6 members Latest Activity: Jun 13, 2018

    Connect with other 2018 PPMD Annual Conference attendees.

  • Step Mum's to kids with B/DMD

    4 members Latest Activity: Feb 1, 2018 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

  • Advisory Committee Group

    30 members Latest Activity: Oct 16

  • Exon skipping 53

    19 members Latest Activity: Jun 16, 2018

    Hi,

    My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

    Thanks,

    Amrit

  • India

    29 members Latest Activity: Nov 27, 2018 For folks to share information about any research happening in India for Duchenne.

  • Lose to Cure MD

    14 members Latest Activity: Dec 16, 2012 Pledge to donate $1 per pound of weight lost to PPMD Research. Let's motivate each other to lose weight and be healthier and raise money for PPMD at…

  • Gapko Survey Development

    4 members Latest Activity: Aug 4, 2015

    This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • Hispanic and Latino Families with Duchenne

    4 members Latest Activity: Dec 12, 2017

    Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…

  • MD In Kenya

    2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

  • Duchenne MD & Autism Spectrum Disorder

    10 members Latest Activity: Jan 18, 2016 Patients living with DMD & Autism Spectrum Disorder. 

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service