PPMD Community

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All Groups (128)

  • Adolescence (age 7-12)

    121 members Latest Activity: Jul 27, 2017

  • Step Mum's to kids with B/DMD

    4 members Latest Activity: Feb 1 Just a group to hear from other step mums about their experiences. Living full time with step kids or part time, dealing with the biological mums in…

  • Gapko Survey Development

    4 members Latest Activity: Aug 4, 2015

    This group is formed to assist in development of a survey to determine the information needs of young adults (age 14 and older) with DBMD.

  • Qatar DMD group

    4 members Latest Activity: Apr 6, 2016

    God Bless you.

    Dear I am creating this group to be in touch with parents of DMD (Duchenne Muscular Dystrophy) within…

  • NOVA parents

    4 members Latest Activity: Jan 18, 2016 I'm hoping to connect with some other parents in the Northern VA area... Anybody out there?

  • Hispanic and Latino Families with Duchenne

    4 members Latest Activity: Dec 12, 2017

    Support group for families in Latin America with family members with Duchenne. This is a bilingual group English and…

  • Exon skipping 53

    18 members Latest Activity: Dec 12, 2017

    Hi,

    My son has deletion 48-52 and need 53 skipped. Want to get in touch with any one who needs 53 skipped.

    Thanks,

    Amrit

  • MD In Kenya

    2 members Latest Activity: Jan 18, 2016 I am looking to meet families afflicted or affected by DMD in Kenya,East Africa.So if you are out there and would like to join hands,come over with…

  • Exon 17 skipping

    4 members Latest Activity: Jan 29, 2016

    Only 1.9% in the cases of exon deletion;

    Only 1.9% opportunity for receiving treatment;

    Let's join hands for our sons' future !

  • EXON 11 SKIPPING Group

    4 members Latest Activity: May 30, 2016

    Hi everyone.

     

    I am creating  this group for a simple reason for finding all the children who require exon 11 Skipping.…

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