A place for families and friends living in Washington and the Pacific Northwest to connect.
Latest Activity: Jul 11, 2016
Started by Ann Avery Jul 11, 2012.
Started by bob koch. Last reply by Jason Hubal Jan 28, 2012.
Started by Heather Vaughan. Last reply by Wyatt's Mommy, Melissa Mar 3, 2010.
We're going-- I have a 7 yr. old with DMD, deletion 65-67 (rare). We live in Bothell (just north of Seattle). How old is your son?
We are excited to be traveling to Seattle for the FACES meeting on Sunday. Is anyone else on here attending?
I just want to make sure that everyone heard about the FACES meeting time....third times the charm :) Hope to see you all there.
Who: DMD Families (anyone 16 years and older for those wanting to bring their sons)
Where: Children’s Hospital Wright Auditorium
When: January 20th 2:00pm – 5:00pm
Coffee, tea, soda, water and mid afternoon snacks will be served
Please RSVP for this meeting by replying to this email with how many will be attending. We’d like to have a proper headcount. We hope to see you at the first meeting!
Ryan Fischer Director of Outreach and Advocacy 401 Hackensack Avenue, 9th Floor Hackensack, NJ 07601
I will see if I can get it from Ryan to send to you. What is your email address??
Does anyone have an agenda for the FACES meeting on the 20th? We are trying to decide whether to travel up from Walla Walla.
Lynn, so sorry that you did not het the word about the cancellation. I am pretty sure that Ryan sent an email to everyone that had RSVP'd and I thought to all of the Washington people. However, the internet and power has been down at the PPMD office since the hurricane and he was going with what he could on his computer. You are so right that we should have posted it here as well! Please accept our apologies for all of this! We are all new to the FACES stuff and hopefully we will get this all down! Will let you all know when the meeting is rescheduled. Again so sorry for all of the mess up and inconvenience to all of you!
Oh no! I got a couple of messages that the event was cancelled (postponed) due to the Hurricane. I'm sorry, Lynn! I guess nobody thought to post it here.
I am looking forward to seeing you all there. I did rsvp to Ryan. :)
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