Washington & Pacific Northwest Families

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Washington & Pacific Northwest Families

A place for families and friends living in Washington and the Pacific Northwest to connect.

Members: 50
Latest Activity: Jul 11, 2016

Discussions

Wheelchair Van Offered for Sale

Started by Ann Avery Jul 11, 2012. 0 Replies

volunteering

Started by bob koch. Last reply by Jason Hubal Jan 28, 2012. 1 Reply

Careproviders in Rural areas

Started by Heather Vaughan. Last reply by Wyatt's Mommy, Melissa Mar 3, 2010. 2 Replies

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Comment by donna on July 11, 2016 at 9:55pm

we go to Childrens in Seattle.   There are a lot of other families in this area with boys, your boys ages.  Check out the facebook group. It is a great place to connect and ask questions etc.  I am not involved in any support groups other then the Faces group.  If you want to meet for coffee some time message me. My son is 18 and we have been through all the emotional roller coaster events over the past 13 years. HUGS to you both! Aimee and Katie. 

Comment by Aimee on July 11, 2016 at 9:18pm
Katie, I'm not involved in any groups right now. It is very hard but I stay busy to try and keep my mind off of it. We just got a prescription for a wheel/scooter for my 8 year! I have the days I just break down...
Comment by Katie Naar on July 10, 2016 at 7:24pm
Thank you Donna I will. How are you managing? What hospital are you using? Aimee we are looking to buy a home in Bonney lake. Are you involved in any local support groups? How are you managing?
Comment by Aimee on July 10, 2016 at 4:14pm
I live in Bonney Lake!! I have 2 boys with DMD, ages 8 and 2.
Comment by donna on July 6, 2016 at 1:21pm
I.live in Spanaway. My son is 18.
Comment by donna on July 6, 2016 at 1:09pm
Katie. Check out pacific Northwest faces group on Facebook
Comment by Katie Naar on July 5, 2016 at 4:03pm
Hi I'm looking for other families that live in the puyallup area to connect with . My son was just diagnosed with DMD. I'm hoping to find someone who understands what we are dealing with.
Comment by Jacqueline M McConnell on August 12, 2013 at 3:41pm

Is anyone giving their kid creatine monohydrate?  I'm bummed because GNC discontinued the orange tablet my kids have been taking since diagnosis.  The new one they have is a beefed up blend that includes creatine.  Not too comfortable with that.  Anyone tried that or another kind?

Jackie Mc.

Comment by kimmy watters on February 25, 2013 at 6:55pm

 hey janelle  are we going to  have the auction  at the same place my friends been asking and how much are the tickets.kimmy

Comment by kimmy watters on February 17, 2013 at 1:15pm

thank you janelle  its the same place and time.kimmy

 

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