Thought you might also be interested in this organization:
Please check out The Independence Foundation. This is an organization in Buffalo NY that helps adults & even children who are wheelchair bound or will be to lead more independent lives. They are a great resource for me. The Founders son has Duchenne MD & is 26 years old & lives in one of 3 group homes that The Independence Foundation opened. Not only may they help you you might even be able to help them as well. The independence foundation website