Military Families with DMD


Military Families with DMD

Members: 13
Latest Activity: May 10, 2016



Started by cristina chandler. Last reply by Richard M. Pyryt Jul 17, 2011. 2 Replies

Out of Touch

Started by Linda. Last reply by Sarah Nov 13, 2010. 2 Replies

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Comment by donna on May 10, 2016 at 9:41pm

Cathy Johnson, what questions do you have about Military retired? We have been retired for 6 years now. Ryan is still on tricare prime. we live close to a large military hospital so we are still impaneled to them. We do see specialist at Seattle children, including a MDA clinic, we have had referrals for that so have not had to pay.  You won't have EFMP so if there is anything new, like a new wheelchair you might want to get it prior to retirement. Otherwise you will have to pay a deductible and cost share on new equipment. 

Comment by Cathy Johnson on May 10, 2016 at 11:02am

Any of you out there retired?  I'm trying to navigate Tricare/Navy benefits for dependents of retirees vs. active duty.

Comment by Lynn Bartels on September 12, 2011 at 8:39pm
Has anyone else participated in the EFMP Cornell Forum? I just attended Ft Lewis's today. They still have a few stops call your EFMP program and ask it could be a great avenue to bring about some changes in the EFMP program. I know they have already gone to Ft Campbell some of the issues we discussed were respite care and if the providers are being paid in a timely manner. Just thought I would mention it. They were hired to do an assesment of the EFMP program for all branches.
Comment by Lynn Bartels on August 25, 2011 at 1:17am
Well we just arrived at Ft Lewis its a lot diff from FT Drum. Bought our first house which is exciting but scary. Hope everyone is doing well.
Comment by Katherine Palmer on August 17, 2011 at 8:09am
Hi.  My son was just diagnosed about 3 weeks ago.  I have carrier testing set up for myself soon.  We are at Ft Campbell and LOVE it.  Vanderbilt Children's Hospital is the best!!!  Just wanted to introduce myself.
Comment by Kelli May on May 18, 2011 at 8:21am



If there are any families from southern CA who would like to attend the conference, but can't, please call me or send me a message. As the Parent Outreach Coordinator for Duchenne San Diego (DSD), my goal is to identify as many DMD families in need of connecting in our area as possible, and then make it happen!  We are sponsoring families to attend the conference at no cost, because we believe the conference is THAT valuable. This will be my 7th conference and I have truly benefitted each and every time I come.


If you are not from SoCal, please spread the word to any families you know who are. We are going to have to finalize reservations/arrangements very soon.


My phone number is 619.446.8617.





Comment by donna on February 3, 2011 at 10:37am
Cathy, My husband retired 3 yrs ago. You have the choice to stay tricare prime or go tricare standard. Both have a cost per year. Tricare Prime is what we chose to do. We pay a annual fee but we get medical treatment free at our local military base. If we need specialty care we get a referral and go off base for a co-pay of 12.00 office visit.  Either tricare prime or standard you can get medicines filled on base for free. Also normally children would not be covered after 21 yr old unless enrolled in college. But there is an exception for children with disabilities that they can be covered for life. Find a local tricare office and talk with them. Make sure your signed up and understand all your choices and benefits.
Comment by Cori on February 3, 2011 at 2:41am

Hi Cathy, my name is Cori and my husband is an Active Duty Officer in the Navy and we have a 6 year old son with Duchenne.  If your husband did his 20 years and was not force retired, etc then he, you, and any dependants, (under the age of 23) are still eligible.  It works the same as regular Tricare did while you were doing your stations.  Military hospitals, referral system, prescription coverage, etc...please call them immediately if you are not taking advantage of this program, it is a wonderful one and is only $700ish a year for entire family.

If you have any more questions, please feel free to ask, and good luck!  Cori

Comment by Cathy Johnson on February 2, 2011 at 3:11pm
Does anyone know anything about long term benefits or programs for dependants of retirees?
Comment by Cathy Johnson on November 15, 2010 at 11:00am
That's terrific. We are also retired, in the DC area. Our 5 year old son has DMD. Any ideas about long term programs for retirees still with Tricare?

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