Comment

Comment by Keith Van Houten on September 28, 2010 at 10:48pm

Hi Don. There's a FACES group starting up in Michigan - Pat Furlong will be in town to meet with families at the next meeting, which I believe is Nov 7. I believe they're going to do it in GR. Try to contact Anessa Fehsenfeld or Deanne Friar on here, or private message me your email address, and I'll send it over to them on regular email. We're all on Facebook also, you can look for us there. Definitely consider coming - we had a picnic with about 10 families back in August. Some great families and a good support network.

My son with MD is 11. We have another that's 14. We live in Hartland, MI, which is 30 minutes north of Ann Arbor. Keep in touch.

Comment by Don Cooley on September 28, 2010 at 10:35pm

Hi everyone...my husband and I and 3 children live in the Southern Suburbs of Chicago however, have a family place near Three Rivers, Michigan that we spend 1/3 of our year. Would love to connect up with some Michigan families....My son will be 15 in a few months and is doing extremely well...He has deletion 3 thru 7. He has overcome many obstacles including a broken femur 2 years ago but he isn't letting that stop him....He loves life and lives everyday to the very fullest. Please keep us in mind for any local fundraising events or get-togethers. We would also be very open to having any of you stop and visit with us when we are in the area. Feel free to drop us a note at anytime.
Also would like to welcome the Lundy family back to Michigan...I know that Grand Rapids isn't far from us if you would like to get together. Good luck with your transition. Looking forward to hearing from our Michigan friends. Kathi Cooley

Comment by Keith Van Houten on August 22, 2010 at 7:01pm

Janell - friend request Deanne Friar on here. They live in Grand Rapids, and she and her family are terrific people.

Comment by Janell Lundy on August 12, 2010 at 9:12pm

Both my husband and I were born and raised in Michigan. We have been living in Ohio and Texas for the last 15 years. I will be starting a new job in the Grand Rapids area. We are looking for other DMD families in the GR/ Western Michigan area.

Comment by Keith Van Houten on October 25, 2009 at 7:35pm

Research Update @ University of Michigan
November 2, 2009
6:30 - 8:30 pm
Burlington Building
325 E. Eisenhower Parkway
Ann Arbor, MI 48108

Sponsored by MDA
U of M Clinic Parent Support Group

RSVP to MDA @ 517 706 0348

Comment by Keith Van Houten on September 13, 2009 at 8:59pm

Let's plan for 8:30 am this Saturday. I was thinking maybe we meet in Brighton? There's a Big Boy right off the exit. I'm open to suggestions on the place. We need to do it on the early side, Julie's got an appointment at 11.

How about everyone sends me a private message with their email address, and we can work out the details on regular email.

I contacted Jeff Trecha and Jean Torrance.

Comment by Rosanna Ouellette on September 11, 2009 at 5:05pm

I will plan on it. Let me know the details, thanks

Comment by Karen Barnett on September 11, 2009 at 2:07am

Where are we planning to meet?

Comment by Keith Van Houten on September 10, 2009 at 9:33pm

Just a reminder we're still planning a get together next Saturday morning, the 19th.

Comment by Karen Barnett on August 31, 2009 at 1:09am

Not sure with my work schedule, but I'll try. Mornings I'm usually free. Let me know when and where as the time gets closer.
Karen

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