Medication/Supplement Journals Discussions (11)

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CoQ 10 to 2.5 years old kid?

Hello everyone, My son is now 2.5 years old (he was diagnosed with DMD about 10 months back). Currently we are giving him only creatine po…

Started by Ashok Sangwan

0 May 13, 2014

Matthew Perrotte- Need Advise On supplements

    Deflazacort 24mg  2/5/2012 Vitamin D 500  Calcium 500  2/1/2010-present Matthew took Deflazacort from 2/1/2010 till 4/1/2011  @24mg Fli…

Started by Mark Perrotte

3 May 9, 2012
Reply by Tammy

COQ10 versus Idebenone?

We are new to this and have been on 200mg COQ10 once a day and see a few children on Idebenone instead.  I know this is related to COQ10, b…

Started by Debbie Schneider

10 Apr 27, 2012
Reply by lisa burke

Dylan Schneider

DOB:  07/10/2003

Started by Debbie Schneider

2 Mar 20, 2012
Reply by Debbie Schneider

Did I lowered CPK levels by diet and supplemnets?

Lowering CPK One indication, as I understand, used in clinical trials to check Duchenne treatment efficacy is to check change in CPK's lev…

Started by Nimi Langer

6 Nov 30, 2010
Reply by Nimi Langer


DOB: 12-12-98 DRUG: deflazacort DOSE: 30 mg am START DATE: 2004 COMMENTS: OBSERVATIONS: only noticable side effect is round face, if we rea…

Started by jenn

2 Nov 17, 2010
Reply by Athen's Page

Micah Hogan

DOB: 05/05/2001 __________________________________________________________________ Supp: LIQUID MULTI VITAMINS | Drinkables Miracle Fruits…

Started by MicahsDaddy

4 Jul 27, 2009
Reply by MicahsDaddy

Bradley Jones

DOB: 3/27/1997 Drug/Supp: Deflazacort Dose: 30mg daily Date Started: June, 2008 Comments: Was switched from prednisone 120mg twice weekly…

Started by Lisa Jones

1 Jul 26, 2009
Reply by Lisa Jones

Sam Paschal

DOB: 7/31/2002 ----------------------------------------------------------------------------------------------------------------------------…

Started by Laurie Paschal

0 May 20, 2009

Justin Dearing

DOB: 4-14-96 Drug/Supp: Prednisone--25mg, Prevacid--40mg, Singulair--10mg, Nasonex, Lisinopril--5mg, multi-vitamin, tums Date Started: Pred…

Started by Samantha Dearing

4 Apr 26, 2009
Reply by Samantha Dearing


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