My husband and I only found out our 8 year old had Duchennes this past March. We have been seperated for 5 years and have recently reconciled,for many reasons,we never stopped loving one another but have found with our sons diagnosis,no-one understood us like each other and I was always the one he turned to first and vice versa. Understandably after 5 years apart it was a major decision to give our marriage another go (we never divorced) and our kids couldn't be happier. Our 6 year old drew a picture of Mummy and Daddy with a love heart between us on his first day back at school after holidays and told his whole class "on the holidays my Mummy and Daddy got back together...." don't you love the innocence of kids!
Even when we were apart,we always went to the doctors and clinics together and our bond became stronger and stronger, I know this is a very trying time for everyone but I wanted to share my story to give you all hope. My husband is very hands on,hes very involved in our sons treatment and wants to learn as much as possible.