Comment

Comment by christine good on December 16, 2012 at 6:26pm

Update...my husband and I have certainly had our share of rough patches, and thought about separation many times since the dx. But we are still together. Can't imagine going through this without him, even though some days I want to throw a shoe at his head.

Comment by danielle on December 16, 2012 at 4:01pm

We have a seven year old that was diagniosed with dmd at age 4. Since we found out we have had our rough patches but now that we have excepted whats happening we are stronger than ever.

Comment by Mandana on November 30, 2010 at 3:10am

We divorced after 10 years of marriage. How do I face life? Working mom with two MD kids? I get truly inspired by some words of "experienced" moms, telling us that their sons do have careers, a life etc! It does bring hope for a future.

Comment by Fran Clavey on April 27, 2010 at 11:01am

My husband and I have been married for 12 years now and unfortunately DMD has divided us. He cannot handle our son's diagnosis and everything else that goes with it. For comfort he has turned to his addictions of alcohol, chewing tabacco and I'd rather not say what else. Feeling like a single parent most of the time since I get no support from him whether it's emotional or financial. I work part-time and have to pay all of the bills because he can't, he can only pay the mortgage. Feeling stuck. Thanks for letting me vent.
Fran

Comment by Joshua's mom on March 23, 2010 at 9:25am

You may be "the bad guy", but the boys will have a lot more respect for you later on in life. Kids need consistency, no matter how old they are, as long as they are kids! Don't feel bad. You have now taken on the mother and father roll. In your situation, it sounds like they go to the babysitter's every weekend.

We too were told that 95% of moms and dads divorce when their child is given a diagnosis of Duchenne. You are not the only one!!!

Comment by Amanda Trosper on March 23, 2010 at 2:39am

I'm going through a divorce to Kelly I'm scared to but I don't worry about it for some reason it's the last thing I worry about I'm shocked cause my ex is seeing another woman and living with her and we've only been seperated for 5 months and my boys like her and she had her kid's takin away and they aren't treating the boys right at all they keep the kid's up till midnight and then when they come home they are so tired they want to sleep they let the boys do whatever they want and then I'm the bad guy cause I don't let them do whatever they want. With a special needs child you have to be strict.

Comment by Tanya Fleming on March 4, 2010 at 3:50pm

How is everyone in this group update us if needed, we are family remember that.
Love Tanya

Comment by Kelly Bruhl on January 23, 2010 at 4:23pm

Sadly, my family seems to be joining the ranks of the seperated/divorced. I am in a state of shock that my husband is leaving. I'm also absolutely terrified of not being able to meet all of Cade's physical needs. Any advice would be appreciated. Thanks.

Comment by Tina & Darren Harris on December 21, 2009 at 12:11am

we wish to be in your group. our son has DMD and we have been married for 9 years in 2010.

Comment by Ann Avery on October 14, 2009 at 1:55pm

DMD is indeed something that changes a family dynamics. The parents set the tone and the siblings get an unexpected blessing that teaches them to live in the moment, show your love, and learn such empathy and compassion that they will become GREAT people for the experience. DMD truly tests a couple's commitment and love, especially as men and women view things so differently. The affected son can bring families closer, or divide them. Tread carefully!

My hubby and I have had 40 years together, our son is now 28 and able to work full-time as a software engineer. We have lived apart over 5 years so I could attend University a long ways away from home with my son, then moved 100 miles away to Seattle area so son could work at THAT huge company.
Now we are all together in an apartment while our home goes unoccupied. My son and I had developed our own ways that excluded my husband--and this had to be resolved. Be prepared for surprises as this DMD journey unfolds. As they say, "seize the day". Life is different, but not awful.

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