Hello all,

I wanted to let you all know that we had a fundraiser, called Dancing for Dystrophy, on Friday night. The organization raises money to give grants to families in louisana up to $5000 for medical expenses, etc. They also have Kamp Gumbeaux which is a support system to get families together atleast once a year. Last year there was a picnic and this year we are hoping to send some kids and there families to Disney World. We raised over $40,000 at the fundraiser this year. It was a great success. I wanted to let you all know, so maybe next year you can get some of your family and friends involved and to let you all know about the new charity here in Louisiana, in case you or someone you know with a neuromuscular disorder gets into a financial bind.

I hope all is well with everyone. You can check out the organization's web page at www.dancingfordystrophy.org

Jessica Rownd

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