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I haven't been on the PPMD community for awhile, but I came back to read all the posts, messages, and blog posts I ever wrote. I lost my son 9 months ago. I have decided to write a book about him, so I am in the process of gathering as much as I can to help me remember things. Reading things I wrote about him makes me feel like he is alive again. I want to write a book that makes the reader feel like he is alive. I want to honor his memory.
I am finding things that wrote on discussion boards that I forgot all about and a difficult discussion I started about my son's questions about death.
But I am so thankful to be able to go back and read these things. I wish I still had access to the old message board to see things I wrote during the years after he was first diagnosed in November 2000.
Hello dear friends:
I know for experience this page is not very popular among parents dealing with DMD and the last thing you want to loose is hope for a cure.But While we wait for a cure we need to encourage this wonderful kids to base their hope and faith in God because ultimately he will help us go thru it and if there's a cure praise Him and if they must depart from us praise Him to. My son's relationship with God Helped him tremendously in dealing with this condition and looking back to all we went thru together God was there every step of the way. I was angry at God and felt life was unfair but my son made me realize that Jesus is the answer. Try Him I did and can't wait to see my Ismael again in Heaven
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