Dear Duchenne Grandparents,

We need more Duchenne constituents to ask Congress to Reauthorize the MD-CARE Act.  We can't "chance" this. If Reauthorization does not take place our boys will lose millions toward research, better treatment and awareness.  It is very easy to effectively advocate right from your home.

How to advocate from home Please visit and scroll down to #2 and add your name to the packet drop off. You’ll find a brief survey to fill out that take less than 5 minutes to complete and your information/photo will be printed out and hand-delivered in person by PPMD Advocates that are in Washington during February 11 and 12.

You can also ask anyone you know in your state and all over the country to do this (send them the link) to help our cause.

Also, if you would like to tell Congress more about what it is like to live with Duchenne, scroll down a little bit further (still at #2) and click on Download our template.   You can download an editable Microsoft Word document that will allow you to tailor your own story and insert your ownphotograph. If you need help with the template please contact Gail McVicker at  This will be hand-delivered to your representatives DC office and possibly we will secure and appointment to explain in person. When completed please email it as an attachment to Ryan Fischer at

Just imagine how impressive it will be when we walk in to visit the Congress reps’ DC offices with a stacks of information from actual constituents! This will certainly make them take notice.

On January 28, Ryan Fischer posted a blog that tells our progress to-date regarding Advocating in Washington, DC and/or Advocating from home. It will be updated daily. WE STILL NEED MORE CONSTITUENTS TO REACH OUT. A map showing your district and the names of your congressmen can be found at:

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