Hi Florida Families,
We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and we just realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. We are willing to drive and go anywhere to get the medicine but need to know ASAP please if we have any options that do not represent a drastic change in plans for the whole familiy and extended family that is with us. !! Sorry to bother you wiht this!
Thanks and God bless you!
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416
hi leslie, what about calling dr wong to have her call a script into a local pharmacy?
You are just great and wonderful! Dr. Wong was great! and she sent us a prescription for Prednisone. Also, we found a Dad that is coming to Orlando and will bring us Deflazacort.
Thanks again to all!!