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Comment by Tanya Fleming on September 4, 2008 at 12:07pm

Wow do you have all day to read this or what? LOL
With two in wheelchairs, I will say I really don't need exercise???
My day starts when I get home from work. I work a night shift. I usually will give the boys their showers at night before I leave for work or dad will do them, so that is not an issue in the morning. I have to completely dress both boys, take them to the bathroom, make their breakfast, make sure they eat breakfast, take vitamins, drink their milk. On top of this, I have to adjust and readjust Joshuas feet probably 20 times before we leave the house. Joshuas (15) arms do not have much strength left in them so therefore I feed him, hold his cup so he can drink his milk. I have also brush his teeth for him. Which we have a pretty good system down for that. In between all this I have to keep checking on my 16 years old daughter to see if she is ready yet??? Then at 7:15 we are in the van headed to school. At 8:30 I get home and clean the house alittle decide what is for dinner, go to the store if needed. Then I lay down for a few hours from working all night. Get up at 2:45 in the afternoon and start again. Justin (11) get home from school at 3:15, then we head to town to pick up his brother and sister from the High school. Get back home around 4:30 and them finish up by making dinner, cleaning up the dishes doing homework, running any last min trips to the store, then off to work I go. On Tues and Thrus nights we all go to bible study. I hope this is what you were looking for???
Thank you for reading.
Tanya

Comment by Marla & Vaughn Tabor on August 6, 2008 at 4:32pm

I am anxious to hear what others face day to day. Of course, I know that every child reacts differently to the disease, medication, etc. and the disease progresses at different rates, but nevertheless, we are all basically facing similar if not the same problems. Sharing will help us to feel that we are not drifting into the unknown alone. Thanks for this group!

Marla