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Is it dr Kevin Flanigan`s research hope for our boys with duplication?Started by Dalibor Randjelovic |
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Nov 7, 2017 Reply by Sai Chand. Gurujala |
Calling all duplications - and checking in on status of where our guys are atHello fellow duplication parents - I wanted to check in and see where you son's are at. Can you respond and list the following? 1) what d… Started by Char Burke |
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Oct 18, 2015 Reply by Limca Jhaveri |
How are your son doing with duplication(S)?I am curious to hear from this group how your son is doing - including what their mutation is; what age and any thing that they are struggl… Started by Char Burke |
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Dec 26, 2012 Reply by Nid Hadidi |
trial readinessOk - so I am hoping that someone can help me with how to be lined out for a clinical trial. If you recall any articles on the subject - th… Started by Char Burke |
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Dec 18, 2012 Reply by Char Burke |
duplicaton of exon 8-13 (out-of-frame)I would like to know if anyone's child has this duplication and how they are progressing? And if you can describe me your child's developme… Started by Dalibor Randjelovic |
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Sep 20, 2012 Reply by Sherri Looper |
duplicationsHey mom's of boys with duplications. Do you feel like all the boys have deletions and your son is unique? I do...and I feel like all the re… Started by Char Burke |
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Jul 18, 2012 Reply by Daina Ajithan |
What duplication does your son have?Bradley has an exon 2 duplication. I'm wondering what this will mean for his progression. I'm thankful to say he is still walking at age 11… Started by Lisa Jones |
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Aug 28, 2011 Reply by Lee Ann Faeth |
duplications and future therapieswhat are you parents with DMD boys looking and researching for duplications and future therapies? Thanks. Char Started by Char Burke |
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May 17, 2011 Reply by Char Burke |
Feeling left behindI was just reading on Facebook that a parent was called about US Exon Skipping Trials. While I am happy for that group of boys only (15%)… Started by Char Burke |
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Mar 24, 2011 Reply by Isabel Cubas |
Taking a pole of duplicationsage of son therapy drugs care stretches ambulatory or not what research are you following cognitive issues or behavior issue Thanks! Char B… Started by Char Burke |
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Feb 14, 2010 Reply by Char Burke |
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