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Duchenne Smiles

A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Members: 115
Latest Activity: Feb 27, 2014

A Duchenne Smile, A true smile

Since finding out about Jake and Colin having DMD, I have not had a lot of joy come from the word Duchenne. It’s was not a word I was aware of before the boys’ diagnosis, and if given the choice I’d rather not know its meaning. Learning the word along with the new adventure coming with it has made it a word that I don’t like to say. Well today while searching the word on google, I found a meaning that I like A LOT better. A Duchenne smile. A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment. I thought how ironic, our boys at times may find it hard to smile, but when they truly do, it carries the same name as what can make for hard days. So I decided to make this group, where we can share stories and photos of our boys and they’re Duchenne smiles  I encourage you to do so. I’d rather associate the word Duchenne with a smile..how bout you?
The main photo is of my son Jake at his make a wish trip. He asked to meet the coast guard, and that “Duchenne smile” pretty much sums up what a great experience it was.
Peace and Love…..Danielle Bath

P.S. here is a link to its description on wikipedia...
http://en.wikipedia.org/wiki/Smile

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Comment by Emma Jerred on February 24, 2009 at 4:27pm

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Comment by Mary Sahagun on February 23, 2009 at 9:31pm


Aways had a smile on his face. We called him our happy boy.
Comment by Tanya Fleming on February 23, 2009 at 7:56pm

Comment by Tanya Fleming on February 23, 2009 at 7:56pm

Comment by MicahsDaddy on February 23, 2009 at 7:30pm
Here's some help for anyone whose picture is out of whack. I learned it when mine came out strange and am passing on the knowledge:

1. Delete your post by clicking on the little red x on the right of your original message.
2. In the "Add a Comment" frame, click on the "Add an Image" icon.
3. At the "Add an Image" pop up:
....a. Browse to your picture.
....b. Click on the red "> Options" link.
....c. Select the "Create thumbnail?" check box.
....d. Select the "Popup Window?" check box.
....e. Click on the "Add" button.

This will shrink the image down to a decent size, i would assume in all cases, and people can click the image to open the original size if they would like.

Hope this helps,
Christian
Comment by Cathie Bullis on February 23, 2009 at 7:26pm
The smiles are one of the greatest gifts of DMD.
Comment by Johanna on February 23, 2009 at 6:48pm

I had read about the "Duchenne Smile" when Archie was diaganosed and I have the definition stuck on my fridge. My boy definitely has it.......
Comment by vicki george on February 23, 2009 at 3:37pm
welcome, My son chantz and my daughter mikayla have a very rare form its an alpha form, your feelings are feelings i still have we just found out about mikayla a couple of days ago, be strong,wear a smile each and every day just for them.if you ever need to talk just let me know
Comment by MicahsDaddy on February 23, 2009 at 2:01pm
Disney Cruise, the Magic, Captains Dinner, May 2007.

Click image for pop up of original size.
Comment by Sabrina on February 23, 2009 at 1:48pm
love the group
 

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