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Duchenne Smiles

A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment.

Members: 115
Latest Activity: Feb 27, 2014

A Duchenne Smile, A true smile

Since finding out about Jake and Colin having DMD, I have not had a lot of joy come from the word Duchenne. It’s was not a word I was aware of before the boys’ diagnosis, and if given the choice I’d rather not know its meaning. Learning the word along with the new adventure coming with it has made it a word that I don’t like to say. Well today while searching the word on google, I found a meaning that I like A LOT better. A Duchenne smile. A Duchenne smile is a True smile, cannot be faked and exemplifies true enjoyment. I thought how ironic, our boys at times may find it hard to smile, but when they truly do, it carries the same name as what can make for hard days. So I decided to make this group, where we can share stories and photos of our boys and they’re Duchenne smiles  I encourage you to do so. I’d rather associate the word Duchenne with a smile..how bout you?
The main photo is of my son Jake at his make a wish trip. He asked to meet the coast guard, and that “Duchenne smile” pretty much sums up what a great experience it was.
Peace and Love…..Danielle Bath

P.S. here is a link to its description on wikipedia...
http://en.wikipedia.org/wiki/Smile

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Comment by Danielle L Shoupe on June 30, 2009 at 2:16am


My name is also Danielle I'm a single mom to 10 year old Christian.
Comment by Lisa Vernarsky " Dalton"s Mommy" on May 15, 2009 at 9:02pm

Hi im Lisa "Dalton's mommy" I can honestly say I never knew about Duchennes until we found out Dalton had it. Everyday is another hard day but when my child smiles at me and says mommy I love you It somehow gets me through the day, you my dear are certainly right about the Duchennes smile.
This picture was taken at sea world two years ago
Comment by Catriena Martel on April 1, 2009 at 1:42pm

This is Brandon...he's 14 years old and also has that wonderful Duchenne Smile!!.....
Comment by Char Burke on March 7, 2009 at 11:58pm
I love to see all these boys smiling. It warms my heart~! Thank you all.
Comment by Laurie Paschal on March 7, 2009 at 7:08pm

Comment by BOZ4J on February 26, 2009 at 1:23pm
Comment by MicahsDaddy on February 23, 2009 at 7:30pm
Here's some help for anyone whose picture is out of whack. I learned it when mine came out strange and am passing on the knowledge:

1. Delete your post by clicking on the little red x on the right of your original message.
2. In the "Add a Comment" frame, click on the "Add an Image" icon.
3. At the "Add an Image" pop up:
....a. Browse to your picture.
....b. Click on the red "> Options" link.
....c. Select the "Create thumbnail?" check box.
....d. Select the "Popup Window?" check box.
....e. Click on the "Add" button.

This will shrink the image down to a decent size, i would assume in all cases, and people can click the image to open the original size if they would like.

Hope this helps,
Christian. -----------------------------Hi Christian thank you for directions how to post decent those pictures. I never would figure out myself. Is there anyway you may send any technical suggestions to PPMD. First question is if they can fix the problem not paying thousands to the website creator . I know that you are in computers and you know the answer.(wink) (by the way I missing little smiles here, for person like me with crippled language abilities , having those would make whole difference to express myself sometimes)
Comment by Joshua's mom on February 26, 2009 at 12:11pm

Comment by Cathie Bullis on February 25, 2009 at 11:17pm
Michael is 7 years old (8 on May 29). He is lucky enough to be in the PTC 124 study and we are hoping that this study will help our boys and future boys. Cross your fingers!! These smiles are what makes us "go on" and want to help in every way we can.
Cathie Bullis
Comment by Ana on February 25, 2009 at 9:48pm

Comment by Tanya Fleming on February 25, 2009 at 10:11am

 

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