Nick and I will be driving down Thursday morning for appts Thursday pm and all day Friday. We'll be on A3 South Friday, staying at the Hannaford Suites Thursday night b/c we like it, even though it's on the other side of town.
We'd love to meet you while we're in cincy. We'll be in late Monday night staying until Friday afternoon, I'll have to check our schedule but we'd love to get together. I'll try to call you over the weekend ... my cell is 630-988-7779.
Gretchen ... I'm looking forward to seeing you! Call my cell and we can try to meet up at he hospital, have a safe trip!
We go to Cincinnati July 29th and 30th. It's our fourth time there (3rd year - we went 2 times in one year to check on Nicolas' toleration to deflazacort). I do think it's definitely beneficial to be there and they have the best teams of doctors, including Dr. Wong, but when we were there last year, she asked us to be part of the Exon Skipping trial this summer (Nicolas' deletions are 45-50 so he qualifies for this trial). When I emailed Dr. Wong a few weeks back, she said it's not in the States yet. This was very disappointing. Of course, our hopes were high and we were let down. Oh well, just another roller coaster ride we all deal with day in and out.