Lane was 26 months old the first time we visited Dr Wong. Lane turned 8 in August...and we still see Dr Wong but we are fortunate to live in Kentucky. When we first visited Dr. Wong it was unheard of to start steroids that early...after some lengthy discussions she agreed to let me start Lane on Deflazacort when he turned 3. Lane was the first she started at this age. Lane is still running and even jumping and can pedal a bike! Dr. Wong told me in April by starting him on steroids when we did, we have added 5 yrs to his life!
Veronica, My son was 15 months when I started going with Dr. Wong (he is now 3). At that time I was living in Venezuela. I moved to Cincinnati because him. You can stay with us with if you want when you come visit Dr. Wong. I really mean it. We have 3 kids, a 3yr old (with DMD) a 2 yr old and a 5 month old so we have lots of toys for your son!! (which could make the experience more enjoyable for him). Now, I can also help you if you want getting you a babysitter that could go with you so that you can focus on the conversation with Dr. Wong. This is what I did sometimes since our boy was very whiny and it was difficult to really take advantage of our visit and limited time with Dr. Wong while hearing our baby crying and whining... so having the Nanny to go with you can be a nice option and I think I can help you with that - on getting someone you can help you and someone you can trust.
Here is my phone in case you want to call me - (513) 765 9416