Cincinnati Children's Hospital Medical Center


Cincinnati Children's Hospital Medical Center

For families who take their children to Cincinnati Children's Hospital for DMD/BMD  medical care.

Members: 193
Latest Activity: Sep 17, 2015


Hotel recommendations

Started by Keith Van Houten. Last reply by Amelia Nov 10, 2014. 17 Replies

What Dr. Wong has done for me

Started by Kelvinsmom - Michelle. Last reply by Rachel Sedacca-Replogle Sep 3, 2014. 18 Replies

Serial Casting

Started by Wendy Juzwiak. Last reply by Wendy Juzwiak Aug 4, 2011. 3 Replies

Comment Wall


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Comment by Wyatt's Mommy, Melissa on January 30, 2014 at 5:23pm
We live in Washington state and our insurance covers doctor wong too. You could probably call your insurance company or go to their website and find out. And i believe only Ohio residents can use the MDA grant. I was told you can only use the grant in your own state but i might be wrong
Comment by Wendy Juzwiak on January 30, 2014 at 11:50am

We live in NY and they take our insurance! 

Comment by Amy Sienkiewicz on January 30, 2014 at 10:36am

Looking into seeing Dr. Wong. How does it work with insurance? We are from PA. I am assuming insurance probably won't cover it. Is is considered an MDA clinic?

Comment by Mandy on July 30, 2013 at 1:53pm

Thanks Eileen, I did some checking and hopefully booked a perfect hotel for us.

Comment by Jessica Divin on July 24, 2013 at 10:34am

Anyone in next week? We will be there July 29-Aug1.

Comment by Eileen DeLong on July 24, 2013 at 10:19am

This will be our 8th summer trip to Cincy and my favorite areas so far are the Blue Ash area and the Eastgate area. The only area I did not like was Sharonville because it had a lot of train noise at night. But I like to try a different hotel every year so we can check out more of Cincy. My boys really love to swim so it all about the pools for us. The Radisson in Covington has the best pool but the room was small and the service was not very nice. We are staying in the Forest Park area this year at the Springhill Suites. Do some price checking on hotels not on the hospital list there are so many.

Comment by Wendy Juzwiak on July 23, 2013 at 10:49pm

Donna, thanks for the heads up!  I was hoping to get some feedback from here.   I know the concierge doesn't really know the ins and outs especially if families don't leave their feedback (we had to with the Wingate...they had a sports team there running through the halls around midnight when we had to be up early for appointments!).  I appreciate your opinion!


We would love to meet up with other families!  We love to give our son interactions with other kids who "get it".  I think it is also helpful to be around the parents for that same reason!  Any ideas where we could sit and visit?!

Comment by Mandy on July 23, 2013 at 8:32pm
We are going August 6th to August 8th, is anyone else going then ?
Comment by Mandy on July 23, 2013 at 8:31pm
Anyone going August 6 - 8 ?
Comment by Donna Cicardo on July 23, 2013 at 4:31pm

Wendy Juzwiak  We stayed at the Garfield, it is NOT handicap accessible in the rooms. our boys could not brush their teeth at the skin, almost fell several times putting them on this flimsy little chair they called a handicap chair.  they called this the handicap room but nothing was handicap about it at all.  will not stay there again.  we will in cincy with another family the week of Aug 11-16.  We are staying at the SpringHill Suites Cincinnati Midtown  hope this hotel is better.  maybe we will see you all too.


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