Becker Parents Discussions (5)

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Dearth of Becker clinical trials

Here is the message I tried recently to post at the Advisory Committee Group: I couldn't find a way to comment on the news on the website,…

Started by Ren

0 Oct 16, 2019

what's your all bmd mutation?

I have a son who was diagnosed with dmd. But, we never had the muscle biopsy. Just wanted to know you all mutation and whether you had it c…

Started by Char Burke

7 Nov 23, 2014
Reply by Amelia


I'm a little hesitant to post here..but just wondering. My son's report indicates DMD/BMD...we are told DMD though?? Deletions are out of f…

Started by Darcy Tumminello

7 Jul 21, 2010
Reply by Char Burke

How do you know in frame or out of frame?

My son was recently diagnosed with BMD (at least 92% predicted BMD with dna test) He has a deletion of 45-48. I was not told if it is in or…

Started by Lisa Anderson

3 Dec 15, 2009
Reply by Lisa Anderson


Is anyone here with a BMD diagnosis taking steroids?

Started by Keith Van Houten

3 Feb 27, 2009
Reply by Roxanne


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