Aussies - Duchenne Foundation Discussions (6)

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Early Date Claimer - Riding the Wave ~ 2012

Start saving up for our next joint National Conference 5-6 October, 2012. Venue =  Bond University, Gold Coast, Queensland.  Our conference…

Started by Deb Robins

0 Dec 10, 2011

Events - October 2009

First, our online chat with Annemieka Aarstma-Rus, registered in PPMD community events. Full info ... The big event - our Sydney Blueball…

Started by Deb Robins

3 Oct 2, 2010
Reply by Deb Robins

National Registry

Our advocacy for infrastructure for a national registry and countrywide fine mapping, which would allow us to mesh wholesale with the globa…

Started by Deb Robins

3 Sep 20, 2009
Reply by Deb Robins

Please watch and pass on - my poem to my son.

I wrote this for my 4 year old son James, late last year. On March 7th (last Saturday), my husband headed off on a mammoth bike ride from S…

Started by Sharyn Thompson

0 Mar 10, 2009

Carer's Submissions

You may be aware that the new Commonwealth Government is conducting an inquiry into BETTER SUPPORT FOR CARERS who care for those with chron…

Started by Deb Robins

1 Jul 30, 2008
Reply by Deb Robins

The Tour Duchenne - Sydney to Melbourne Bike Ride

This post is for any Australians or Singaporeans, or anyone interested in helping to raise money for research to find a cure for DMD. I am…

Started by Sharyn Thompson

1 Jul 30, 2008
Reply by Deb Robins

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