Hi there. My son is 9 1/2 years old and we are definitely seeing a progression. Stairs are becoming more and more difficult. Getting up from a sitting position, walking uphill, running.....all becoming much more of an effort. While walking, he has developed that "chest out, shoulder's up" stance. More falling too. Being developmentally delayed, his maturity has always been a few years behind, so he is just now beginning to make comments on "hating his legs" and such. I knew this was coming, but it does not make it any easier.
I pray that he is one of those boys who is still walking in his teen, but I worry since we are seeing this difficulty now. (He has been on prednisone and all the other typical suppliments since he was diagnosed at age 3.)
Dr. Leshner says he is still looking good and his strengh scores are still 4's and 4+'s. His school PT also reassures me that although she does she a change in his stance and endurance level, he is still strong for his age and doing well.
Maybe it's harder because as he classmates grow and become more coordinated and athletic, the differences are more obvious. He is so much smaller and slower.
I know there are no solutions. Just sharing these feeling with others who "know" helps some how. Did I mention that I hate DMD with every ounce of my soul?