What time of day do you give the steroid dose?

My son is on Deflazacort every other day and we are having some increased anger and outburst issues at school.  I am wondering if anyone out there gives the steroids at dinner instead of breakfast to cut down on these behavior side effects.  I know you are supposed to give them in the morning, but is anyone bucking this conventional wisdom???  With the Deflaz these outbursts are pretty mild but it is uncharacteristic for my usually happy kid.

Thanks all!

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Permalink Reply by Archana on March 29, 2010 at 5:26pm
Hi
My son takes prednisone and we give it to him in morning ,he had very hard time sleeping when he was taking this med at night.So I believe that day time is the best time .
Permalink Reply by Anne Hancock on March 29, 2010 at 5:51pm
Good point, I don't want to mess up his sleep which is just as important if not more.
Thanks for responding Archana!

Archana said:
Hi
My son takes prednisone and we give it to him in morning ,he had very hard time sleeping when he was taking this med at night.So I believe that day time is the best time .
Permalink Reply by Darcy Tumminello on March 29, 2010 at 7:27pm
My son has the same problem at school and we did switch to evening and have no problem with sleeping at night and may have cut some of the issues in the classroom. Waiting for report card to arrive as we speak. Is he taking Omega 3? I've noticed that helps my son. I do give him that in the morning with a multi vit.
Permalink Reply by Anne Hancock on March 29, 2010 at 8:02pm
Darcy,
I am getting some omega 3's soon. I am going to try that as well. Do you give him any special multivitamin? Did the doctor suggest switching the time of day you gave him the steroids? I haven't asked my son's doctor yet but will at his next visit. I hope the report card is good.
Thanks,
Anne

Darcy Tumminello said:
My son has the same problem at school and we did switch to evening and have no problem with sleeping at night and may have cut some of the issues in the classroom. Waiting for report card to arrive as we speak. Is he taking Omega 3? I've noticed that helps my son. I do give him that in the morning with a multi vit.
Permalink Reply by Lori Ware on March 29, 2010 at 8:43pm
Seph took his at night from the start until the last 6 mths or so. He had no problem sleeping at all. We just gave it to hm right before he went to bed...We switched to morning for other reasons, and that has been ok too...

Good luck!
Permalink Reply by cindy q on March 30, 2010 at 10:26am
Hi Anne,

We switched Cal to every other day deflaz (from daily pred) a couple of months ago. The first few weeks wer tough, he was very short tempered and had outbursts. After a few weeks, it leveled out (I attribute to his cortisol levels adjusting to new dosing) and he is so much better. I know of others who give it at night, but may interfere with sleep. I think as long as you give it the same time every day--morning or night--is what matters. Could you try giving at night and see if it helps the moods?
How long has he been on this dosing-- If only a short while he may just need his body to adjust.
Permalink Reply by Kim Eichelberger on March 30, 2010 at 12:10pm
Hi Anne,

My son (8) has been on Deflazacort for about 3 1/2 yrs. About 3 months ago we swithched from giving it in the morning to giving it in the evening. Our reason had to do with some stomach issues Cole was having. He's not a big breakfast eater and it works better for us to give it in the evening when he eats a bigger meal. We didn't have any problems at all switching over. Good luck whatever you decide.

Kim
Permalink Reply by christine good on March 30, 2010 at 9:18pm
We went from A.M. with many calls from the teacher to P.M. and finding Kian in the living room watching Jay Leno. So now we give it to him when he comes home from school and this seems to work best.
Permalink Reply by Rhiannon Traigle on March 31, 2010 at 12:42am
Anne,
I posted a discussion called "Fighting the Side Effects" at the beginning of the month (you can find the link from my page or it should be under steroids) because i was having trouble with Riley's behaviors too. A lot of parents posted some suggestions there...just wanted to let you know in case you want to check it out. Btw, we did try to change from morning to night and it didn't make a difference in anything so we just switched him back to morning since we felt more comfortable with it.
Permalink Reply by Anne Hancock on March 31, 2010 at 7:55am
Thanks everyone. Rhiannon, I will definitely check out the discussion.
Anne
Permalink Reply by James Mitchell Dykeman on March 31, 2010 at 8:04pm
My son takes Deflazacort in the evening. He is on the 10 days on, 10 days off routine and has the same issues as your son. He is 8 years old and was diagnosed at 3. He started the school year with a lot of behavioral problems. He has since lost some of his impulsivity at school, but is still having trouble at home. Lots of highs and lows...lots of hitting his brother and sister. My wife and I try to help him through these lows, but he seems to need a little time and then he comes around. He doesn't have any issues with sleep, however. A giant lesson in patience for all involved! I hope this helps
Permalink Reply by JoAnne Powell on April 6, 2010 at 12:54pm
My son takes Deflazacort Mon-Fri, off on weekends. We were giving it to him in right after school and he did not really have any issues with sleep but his behavior seemed worse. We switched to morning because we were told by our dr's that by taking it in the morning it would work along with their bodies natural steriod highs and lows. He sleeps fine and his behavior seems much better when taking it in the morning.

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