We are having the CELEBRATION OF LIFE (PRE) MEMORIAL SERVICE for Timothy on Saturday, Sept. 28. This is a service to celebrate his life and have family and friends come spend time with him NOW and not wait till he is gone to say something. If you have something to say, say it while they are alive and not wait till their gone. It does them no good when they are gone.
One of the things we are doing as well is introducing PPMD using the Coach to Cure MD as well ...and although we have some graphics to use, I think the more impression is hearing and seeing families and young men speak about DMD and how it affects the family. You may also say something to Tim for this service if you like.
We are needing 3-5 families and/or young men who can please send a head shot video of about 3-5 minutes of how DMD affects them and how they have successfully gone through life with all the advancements. If you are willing to do this, please email me at: firstname.lastname@example.org for the mailing address to send the DVD.
And yes at the beginning of the service we are asking folks to donate by texting to the 90999. :)