I am just in the moment when my son,7, is getting frustrated on the differences with his classmates, he has not enough info given by me or his mom and i am looking forward to start telling him more about DMD and how it is going to affect his abilities and how he is going to be limited fora permanent time,.
For now what I have told him is that his legs are still not prepared for soccer, stairs, jumping, karate..etc, this timeline is not real and even though i believe we will find the cure; right now I need to give him clear , strong answers for him to give to other boys.
How did you manage this when you told your kid?, what terms and words should I use?
Should I use Duchenne or Muscular Dystrophy?
How do you manage the classmates and their questions, the parents and their different explanations to the classmates?