Steroids - what to expect? what dosage? which one?

Hi guys, 

I have a lot of questions about steroids, regimes and brands. My son is 4 in April and has to start steroids around November. 

1) Which do you find are better tolerated than others?

2) What regime works best? continuous, 10 on 10 off? other?

3) What should I expect? Mood, features, face etc

If there any resource online where I could research all this? Thanks

Views: 324

Reply to This

Replies to This Discussion

Omaira you should be able to find everything on PPMD. There is also a wonderful Duchenne under 10 Facebook group which is a fantastic source of info.

i have been taking steroids since i was 3.. I'm 20 years old now and can still walk..

Deflazacort is the best steroid to take less side effects..

i take mine before i go to bed with milk.

i took prednisone for about 9 years then switched to deflazacort and my mood has been alot better. 

i tell everyone you need to put your son on steroids as soon as possible i take them everyday and feel fine..

its going to help in the long run your son will be able to walk for alot longer.

Dear Dakota,

Have you taken deflazacort every day? You've always taken it before going to bed? Did it affect your growth?

I'm asking as my son has switched to every other day (under the doc's advice) and I'm not sure it's good... Thanks very much for your advice!

Galia.


Dakota Ferrazzi said:

i have been taking steroids since i was 3.. I'm 20 years old now and can still walk..

Deflazacort is the best steroid to take less side effects..

i take mine before i go to bed with milk.

i took prednisone for about 9 years then switched to deflazacort and my mood has been alot better. 

i tell everyone you need to put your son on steroids as soon as possible i take them everyday and feel fine..

its going to help in the long run your son will be able to walk for alot longer.

Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2020   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service