My son began with 15 mg right off the bat. He never had any behavior problems and has done great on deflazacort. He has been on it for almost 4 years now and is still doing great on the same dosage!
well, since starting Deflazacort last week we've definitely seen an increase in his energy level. There's been no noticeable change in his ability to climb stairs or get up off the floor but we're hopeful that it will help once he's up to the full dose.
hard to say because he was only at the lower doses for a month each. there was probably a little improvement. it's been a year and a half now and we've seen a little decline over the last 6 months.