Starting Deflazacort
My 4 -year-old is starting his Deflazacort within the next couple of days. His prescription is written for Monday through Friday, half a tab once a day. Does anyone have any suggestions on what time of day is the best time to give it or if it matters? Also, why do doctors do them Mon-Fri versus Sat-Thur or any other 5 day increment? I would just like to be able to watch his first couple of days to make sure he has no problems with them. I may be worrying more than I need to I am just terrified about all this medication he is going to be on. Any suggestions from anyone on time of day, days of week and best ways to get a little guy to swallow a pill would be so appreciated!
Replies to This Discussion
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Permalink Reply by Kim Maddux on
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Our son, Alex started taking them 4 yrs ago. He always takes his with breakfast in the morning. Alex has always taken them 7 days a week, never 5. Not sure if other families do that. We spoke to Dr. Biggars from Canada and Dr. Wong before we started Alex on Deflazacort.
Alex is doing great on them. We are pleased.
Good luck.
Kim Maddux
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Permalink Reply by cheryl cliff on
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Hi JoAnne,
We just switched from pred to deflaz a few weeks ago. We had been using pred for a couple of years and always taken it in the morning just after eating breakfast. Some kids can get upset stomach so eating just prior helps and it can cause difficulty sleeping, so we have him take it am rather than pm. Our son takes it everyday so I can't offer anything about 5 day increment dosing. I have read other parents training their guys to take "pills" by learning with M & M's. The deflaz we get comes with very small pills and go down easily.
hope this helps a little
cheryl
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Permalink Reply by Michelle Gonzales on
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Nicolas takes 18 mg every day, and we had issues with the morning. For some reason it made him harder to deal with during the day (for daycare and kindergarten last year), so I spoke with Dr. Biggar and Dr. Wong, and they said to try and switch to giving him deflazacort at dinner time. This actually has been immensely helpful as we do not see as big of a difference in him during the day. No outbursts or tantrums... just Nicolas!
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Permalink Reply by Danelle Dickerson on
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My 7 year old takes 3 deflaz pills 7 days a week in the am with breakfast. I put them one at a time on a spoonful of yogurt. That does the trick for him. I've heard of others using applesauce the same way.
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Permalink Reply by JoAnne Powell on
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Where do you get your deflazacort and what kind. The ones we get from Masters are not real big but they are not coated and for a four year old, they are big and hard to swallow. iI have cut them in half and in quarters as well and still no luck. I can't get Landon to take them. He literally throws up when I put them in pudding or anything. I have tried those special cups for taking pills and everything. It is really worrying me because I want to be able to keep him strong without it being so hard for him to take them.
cheryl cliff said:Hi JoAnne,
We just switched from pred to deflaz a few weeks ago. We had been using pred for a couple of years and always taken it in the morning just after eating breakfast. Some kids can get upset stomach so eating just prior helps and it can cause difficulty sleeping, so we have him take it am rather than pm. Our son takes it everyday so I can't offer anything about 5 day increment dosing. I have read other parents training their guys to take "pills" by learning with M & M's. The deflaz we get comes with very small pills and go down easily.
hope this helps a little
cheryl
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We get our deflaz from Masters and I suspect their pills are shaped the same as yours. Some of our pills, the 12mg ones are too big and must be cut. The 6mg ones are very small, the size of baby asprin. None of them are coated. If Landon is thorwing up from the meds you might want to speak with his doctor or perhaps call Masters to see if Julie can offer any solutions other than pills. I suspect they could be crushed and sprinkled over something but you might want to investigate why they cause him to toss his cookies (texture vs taste). Have you had any luck getting him to swollow a whole M & M's? At first we put the pills on the very back of our son's tongue then gulp a large glass of his favorite drink. Would Landon try allowing an M & M to melt on the back of his tongue?
best
cheryl
JoAnne Hathcoat said:Where do you get your deflazacort and what kind. The ones we get from Masters are not real big but they are not coated and for a four year old, they are big and hard to swallow. iI have cut them in half and in quarters as well and still no luck. I can't get Landon to take them. He literally throws up when I put them in pudding or anything. I have tried those special cups for taking pills and everything. It is really worrying me because I want to be able to keep him strong without it being so hard for him to take them.
cheryl cliff said:Hi JoAnne,
We just switched from pred to deflaz a few weeks ago. We had been using pred for a couple of years and always taken it in the morning just after eating breakfast. Some kids can get upset stomach so eating just prior helps and it can cause difficulty sleeping, so we have him take it am rather than pm. Our son takes it everyday so I can't offer anything about 5 day increment dosing. I have read other parents training their guys to take "pills" by learning with M & M's. The deflaz we get comes with very small pills and go down easily.
hope this helps a little
cheryl
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Permalink Reply by Laurie Paschal on
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We haven't tried this, but it's a thought. http://www.pillglide.com/product.asp
JoAnne Hathcoat said:Where do you get your deflazacort and what kind. The ones we get from Masters are not real big but they are not coated and for a four year old, they are big and hard to swallow. iI have cut them in half and in quarters as well and still no luck. I can't get Landon to take them. He literally throws up when I put them in pudding or anything. I have tried those special cups for taking pills and everything. It is really worrying me because I want to be able to keep him strong without it being so hard for him to take them.
cheryl cliff said:Hi JoAnne,
We just switched from pred to deflaz a few weeks ago. We had been using pred for a couple of years and always taken it in the morning just after eating breakfast. Some kids can get upset stomach so eating just prior helps and it can cause difficulty sleeping, so we have him take it am rather than pm. Our son takes it everyday so I can't offer anything about 5 day increment dosing. I have read other parents training their guys to take "pills" by learning with M & M's. The deflaz we get comes with very small pills and go down easily.
hope this helps a little
cheryl
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Permalink Reply by Darcy Tumminello on
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Michelle,
Interesting, I'm dealing with that now. I think I may switch and see what happens. We recently visited a specialist to see if he had add, odd, or adhd...but nothing. He never stops talking and does have outbursts. Was you son always like this since started meds or did is happen slowly. My sons just started in second grade. This is his second time sitting alone so he learns to shut up....We did not have problems before this year.
Thanks
Darcy
Michelle Gonzales said:Nicolas takes 18 mg every day, and we had issues with the morning. For some reason it made him harder to deal with during the day (for daycare and kindergarten last year), so I spoke with Dr. Biggar and Dr. Wong, and they said to try and switch to giving him deflazacort at dinner time. This actually has been immensely helpful as we do not see as big of a difference in him during the day. No outbursts or tantrums... just Nicolas!
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So far Landon is not really having any behavior problems besides normal 4 year old things. I hope a year from now I can say the same. I have found a way to get his pills in him. I mash the pills into powder between two spoons, put some Mt Dew in a medicine dropper (literally not even half a teaspoon, pour the powder into the med dropped, shake it up then chase it with a drink and he is taking it! Finally! Something that is working!!! We will see a few weeks in how it is all doing. Keep your fingers crossed!! lol! Thanks to all of you for your input!
Darcy Tumminello said:Michelle,
Interesting, I'm dealing with that now. I think I may switch and see what happens. We recently visited a specialist to see if he had add, odd, or adhd...but nothing. He never stops talking and does have outbursts. Was you son always like this since started meds or did is happen slowly. My sons just started in second grade. This is his second time sitting alone so he learns to shut up....We did not have problems before this year.
Thanks
Darcy
Michelle Gonzales said:Nicolas takes 18 mg every day, and we had issues with the morning. For some reason it made him harder to deal with during the day (for daycare and kindergarten last year), so I spoke with Dr. Biggar and Dr. Wong, and they said to try and switch to giving him deflazacort at dinner time. This actually has been immensely helpful as we do not see as big of a difference in him during the day. No outbursts or tantrums... just Nicolas!
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Permalink Reply by Veronica E. on
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How are things going, Joanne? Is he still taking them well? Max is very strong willed, so I worry about taking all these meds when he's older!
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Permalink Reply by Kelvinsmom - Michelle on
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Kelvin takes 15 mg. in the morning, which is only 1/2 pill in gogurt, he is 7. He could care less. It doesn't bother him at all. He takes it after eating and drinking, to help prevent serious problems that can happen if taken with little in the stomach (or even with stuff in the stomach). Also, he did have serious temper tantrums, but, only at first and only until I added the Barleans Pure Icelandic Cod Liver Oil, Fruit Flavor - 1 teaspoon, for kids. The tantrums went away. As a side note, Kelvin had temper tantrums, prior to steroids, as well. The doctors have all told me to only give Deflazacort in the mornings, to keep the natural cortisol levels normal. Kelvin has been on it for nearly 2 years and is doing great. Michelle
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