My understanding is that the sure shot way to diffrentiate between BDM and DMD is through biopsy, where the dysprohine is checked my human eye.
If its no frame shift then I would first have biopsy before I would start on steroids.
We will look into getting a definite diagnosis. I told my sister what you said and she said the genetist did mention Beckers but they were going with Duchenne because of his age and symptoms. Tracey (my sis) says if a muscle biopsy is needed then that is what will be done. I know as you say you are not a doc but sometimes I think we know more than they do. You know yourself any bit of hope you will grasp with both hands. We will do all we can to get a definite diagnosis and I will let you know the outcome. Thanks everyone for all your input.
We live in Ireland, there are not that many cases of it here. So this makes me wonder if the docs are just going by text book rather than actually finding out a definite diagnosis. So many docs have never even heard of this condition. We visit the docs in the capital city Dublin, that is where the DMD docs are based. Thankfully its only an hour drive away but all tests are sent to England so take about 3 months to come back. Keep you posted!!