Did anybody have any news about the price of Translarna?

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Cost is unbelievable:

In Germany:

Box of 30tablet 125mg: 3822 Euro

Box of 30tab. 250mg: 7588 Euro

Box of 30tab 1000mg: 30180 Euro

And who can afford it?
It means that developing a drug for DMD will not be that important as long as the prices will be like this!
Wheelchair is much cheaper!!!!!!!!

Sad fact of market capitalism. Those who can pay, should. Those who can't, lobby your local politicians!

We are facing two problems now instead of one:

1.finding a treatment or cure for DMD

2.Afford the crazy price!

It seems that those with DMD have not the right to LIVE!!!!!

I am not sure which straw we should clutch at?!!!!!

Also,does this mean that any drug for DMD (IF APPROVED) will be in the same price range?

I am very sad

New drugs are usually very expensive because they are very expensive to develop, test, and get through approval phases.  I don't think any family will likely be able to afford most treatments without insurance or Government assistance.

It is a drug to be taken for life! Should it be same range of a treatment???


Andrew Kerr said:

New drugs are usually very expensive because they are very expensive to develop, test, and get through approval phases.  I don't think any family will likely be able to afford most treatments without insurance or Government assistance.

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