With no medical authority whatsoever, just a parent here, I strongly suggest to every parent out there with a boy >10 to look into this.
Not going to cure anything, not a radical innovation either. But it seems to work on the heart and what else really matters?
I will also note that my son, who has been on the open-label extension trial since 9/2013, has also seen marked improvements in lung function. That's NOT part of the study above, just my own anecdotal evidence the combo seems to work
Happy new year all
This is a very interesting result. Definitely one step forward for a therapy with combination of drugs. David what are the drugs that you are giving your son. Can they be started on my 9 year son who's heart function is normal so far.
Hi David.Great news to usher in the new year.I understand that one needs to keep a keen eye on the potassium levels in the patient using Eplerenone or Spironolactone?How often have you been taking your boy to monitor the potassium?Thank you.