Hi I'm Ian,
Just incase you haven't heard I wrote my autobiography all through 2009 and part of 2010.
I myself have DMD, I'm 26 from the United Kingdom and this book chronicles my the first 25 years living with Duchenne.
It's now been published and is available to international buyers on Amazon.com
The book is called DMD Life art and me
This is the write up from Amazon;
"IAN has Duchenne Muscular Dystrophy the doctor tells my parents, a severe, fatal muscle-wasting disease that will lead
to an early death. This is a chronicle of the first twenty five years of
my life living with DMD read through as my abili...ty
to walk disappears, as my breathing deteriorates, as my heart fails and
as I become increasingly paralysed. Despite all the ventilators and
mini tracheotomies I've still got my positivity and determination to see
me through. I'm fighting back by campaigning and lobbying all the while
helping a charity try to rid the world of Duchenne's forever."
If anyone is interesting in purchasing a copy they can visit amazon here; http://amzn.to/bMKKNd
I have a group on facebook which you can join here; http://on.fb.me/d4KRFJ
Check out my autobiography blog; http://inspiredlifebook.blogspot.com/
If you would like to leave a review on my book,
UK readers go here; http://www.amazon.co.uk/product-reviews/1907652337/ref=dp_top_cm_cr...
USA readers go here; http://www.amazon.com/DMD-Life-Art-Ian-Griffiths/product-reviews/19...
Thanks all for reading, hugsss Ian
Thanks Ian for being such a great role model for the younger guys!
I just ordered your book. I look forward to reading it. my son who is 18 isnt doing well emotionally and physically. I myself am very sad and having a hard time.
Thanks everyone! I'm sorry you're having a tough time Michelle