The way I look at it is: Office Administrator
Scheduling appointments, therapies, equipment needed, arranging transportation, keeping track of medications and supplements, accounting, record keeping, archiving, research time, provide and prepare nutritious meals, etc.
And that is just for the medical issues. Then you have help with personal needs, school issues, accessibility issues, all the regular stuff on top and mixed in. And that is for one person of the family, the rest also require their basic needs to be met also and have soccer or swimming lessons and occasionally need to see a doctor, dentist, orthodontist, optometry, call the plumber, take the dog to the vet, get a hair cut or a massage, go for a jog or spend time with a friend over tea or a glass of wine, go on a date.
I'd point out that while driving to appointments and waiting in clinics, none of the laundry or house work can be done, and is still waiting for you when you return
Maybe the vocational evaluator need to hear/see/feel the emotion and hostility, the bitterness at having to do all these things when we'd love nothing better than to have the choice not to.
That's my 2 cents. Good luck,