My son and I have deletion of 10-16. I am symptomatic. Not sure what to do. I have always been very active. After my son was born I started to experience exercise intolerance in 2003. I work as a nurse and am terrified of not being able to work. Anyone with similar situation? I live in Kalispell Montana.

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Lori are you on Facebook? I recently joined a FB Group called DMD Manifesting Carriers that is very active. I've learned a lot and they are very supportive.

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