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Yes, I have heard of guys that young with severe cardiac involvement. Is he on the "big 3" cardiac meds used in DMD?: Digoxin, Enalapril, and the Coreg . Actually, and this sounds so bad......I would rather have my child's heart just stop rather than suffer through respiratory distress. Left ventricular hypertrophy just means the heart wall thickens and cannot beat as efficiently. A friend of ours said he felt "funny" and then his heart just stopped and he died without any pain. (he was 28 with dmd) Another thing I have noticed is that the 3 I know with dmd who died of heart failure at an early age were overweight, which placed an additional strain on the heart. I just know we Moms must stick together to support each other, and you are so fortunate to have such a close friend, even though I am so sorry you have to go through this. I just hope for the best and we must live each day with our sons to the fullest we can. By the way, my son is 28 and uses non-invasive breathing aides. His heart is "not the best" physically, but bigger than the galaxy when it comes to loving life and people. Another mom, Anna
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