Hello families -
I just wanted to reach out to ask a very off the wall question. I am trying to get my son on GH's and he is not GH deficient. We have done all the testing but unfortunately, there is no dr. in Northern CA who will prescribe it (that I have found yet).
On Thursday, we met with a great Pediatric Endocrinologist. I went in there armed and prepared to educate etc. She was very open to discuss but she is very hesitant. She is still 50/50. She wants to talk to some of her peers who are doing this. I will get her in touch with Dr. Rutter in Cincinnat and Dr. Bremer at Vanderbilt.
Do any of you know of any other pediatric endocrinologists who will prescribe GH to DMD boys who are not GH deficient? If so, can you please forward their contact information to me.
Never a Dull Moment in our DMD world...