Hi Jessica, You can call Dr. Wongs office and they have discounted hotels you can book through them. We stayed at the Raddison on the riverfront, its only about 10 or 15 minutes from the hopsital, it has an indoor pool and with their discount was about $78 a night.
If you get on the hospital website and look in the Families and Services Tab>Visiting Information>Services for Traveling Patients>Guest Services>Where to Stay, then click on the Hotels and Lodging which gives you a 25 Hotels Link. That will pull up a list of hotels and tells you what services each hotel offers. We stayed at the Holiday Inn, Cincinnati Riverfront, which was actually across the river in Kentucky, because it was close, had a shuttle available to the hospital, and was under $80 a night. The people there were so nice, the restaurant was good with very nice staff. I am going to try the Ronald McDonald House in July, if we can get in, but if not will go back to the Holiday Inn. One other thing - if you decide to stay there, when you make your reservation, tell them you want the Hospital Discount. They will give you the number to call the hotel directly to make your reservation, because it doesn't pull up in their main headquarters. But make sure you tell them when you reserve your room.
That may be way more info than you were looking for! Lol!
thank you so much for the info... if you guys dont mind me asking how was your experience when you first went to cincinatti ?
Jessica, I have actually just called the family center (I think it's called) at the hospital and they booked everything for me. We too stayed at the Radisson! Good luck. Dr. Wong is amazing, I hope you folks love her as much as our son does. We've been traveling from Seattle for about 3 years to see her and it's worth the trip.
Jessica, our experience was wonderful! Even when hearing things I didn't necessarily want to hear, the doctors and nurses were so compassionate and helpful, it made it so much easier. Dr. Wong and her team are not only extremely knowledgeable about Duchenne, but also, because of her experience, she knows about procedures about how to order steroids, wheelchairs, etc. The doctors around here were very nice, but they just don't have the experience that they have up there. I felt so relieved and assured that Bryce was recieving the best care. We are from Texarkana, Texas, and though it was a long trip, it was so worth both the time and the expense, even having to go every six months. I don't know how far you will have to travel, but you will be so glad you did! I wish you the best!! Let us know how it goes!
I was absolutely scared out of my mind. I had been told some really awful statistics about my sons condition (at the place he was diagnosed). Thankfully after meeting Dr. Wong, I learned that much of the information I was told, was out of date. The staff at the hospital from the lab techs, to the cafeteria folks, to the nurses, to the security guards are helpful and amazing. Everyone makes you feel like the most important person in the world. It's like you walk in the door and they "wrap" their arms around you. The first time we went we did some other stuff too. We went to the children's museum (which if you have the time I totally recommend, the family services at the hospital can get you discounted tickets), and the zoo.
When we were there a few months ago the hospital was going through some major renovations, so make sure you give yourself extra time to find your way around. Good luck!
I totally agree with Melissa! I also recommend the Aquarium!