Thanks Katherine I appreciate your information - they did tell us that fever was typical - was your son at the hospital for his infusion?
Sorry for all the questions - did they give the infusion to your son over a period of two days and have him stay in the hospital the entire time. I am having a heck of a time finding any documentation out there for boys with DMD that have had this - so I really appreciate your input.
Thanks to you all for the information. We are going to go ahead with the infusion on August 10-11 - we are doing it at the hospital with an overnight stay. 4 months after this infusion we do this again and then at the 6 month mark we have another DEXA to see if there is any improvement. I will post how Bobby does on with the first infusion and definitely the results of the Dexa in 6 months. Hopefully this improves his numbers -