Hello...there is a FDA approved drug called flavocoxid that Dr. Guiseppe Vita in Italy just completed a pilot study on with 20 duchenne boys. The results seem to be promising but I did not buy the full paper. Has anyone heard about this or have any additional information they could provide?
Further data is being released by the end of February at the Italian Parent Project annual conference. I've got a copy of a poster produced by the team in Italy if you are interested - please email me at firstname.lastname@example.org
I would like to know if you have any update on a clinical trial testing Flavocoxid in Duchenne Muscular Dystrophy in Italy.
The trial was completed,but no updates.
This drug looks promising. Waiting for the updates.
I received this e.mail from the company which produces Limbrel (Flavocoxid) the results were disappointing:
The study to which you refer was initiated after some positive results were obtained in a mouse model of muscular dystrophy. The human trial was done in a small number of children and, while there were some suggestion of benefit, the results were overall disappointing. The investigators are considering whether to attempt a larger trial but, given the lack of a strong positive indicator, they are reluctant to embark on a larger trial.
Robert M. Levy, MD
Primus Pharmaceuticals, Inc.
7373 N. Scottsdale Rd.
Scottdale, AZ 85253