In October 2015 a small group of familes and friends of boys with DMD are trekking to Everest Base Camp in Nepal to raise awareness and funds for research. My grandson, Griffin, has DMD (but it doesn't have him. He's my hero!) His father and I are going to climb to this height because these boys can't. We're bringing a prayer flag with the names of hundreds of biys with DMD to plant at base camp. A link to my fundraising campaign is at and more on the trek is at

Thanks for listening


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We are carrying a flag with the names of 1,000 boys, some of whom we've lost, some of whom we're still fighting to save. You can follow my trek blog at

Gregg Kaloust

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