We need to gain momentum and let Ptc and Genzyme know that we want access to drug for our sons.We must influence the both company's to give our kids the equal opportunity as the other boys from US and Canada.

 

Please email Ptc and genzyme without the delay.

 

ukmedinfo@genzyme.com

eumedinfo@genzyme.com

dgoetz@ptcbio.com

 

 

Regards

 

Neeraj

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