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I think it is also important to point out to parents of young children that just because their son has dmd does not mean he will have cognitive issues. There is a higher incidence but they do not always go hand in hand.
Janine
Hi Cristina,
My son Kevin is 11 has DMD and Autism also. He was diagonosed with DMD first at age 2 the Autism diagnosis came at age 5 even though he showed symptoms before that. A lot of doctors told me that he had delays and he would outgrow them. We had testing done and he definitly has autism. My younger son age 7 has DMD and learning delays, but not autism. I also have another son age 14 and who does not have DMD or any kind of learning delays or Autism. Makes we wonder just what is caused by the DMD and what is not. How old is your son?
Dianne
HELLO CRISTINA SON JOSHUA DIAGNOSED AUTISM TO HIM AT THE AGE OF 18 MONTHS, I STOP SPEAKING, NOT ONE WORD, AT THE AGE OF 5 YEARS EMPEZO TO ONLY SPEAK AGAIN BUT WORDS, NOW HE HAS ALMOST 9 YEARS OF AGE, AND SPEAKS MUCH MORE, HE ALREADY COMMUNICATES, AND HE SAYS TO YOU THAT HE HAPPENS TO HIM, WHERE HE HURTS TO HIM BUT IN THIRD PERSON, SAYS TO ME TO JOSHUA HURT THE FEET TO HIM, JOSHUA IS HUNGRY, ETC.
IN SEPTEMBER OF THE 2008 IT WAS DIAGNOSED WITH DMD, VERY IT LAST FOR MY, AND ALL MY FAMILY. THEN IT SAID THE NEUROLOGIST TO ME THAT WAS NOT AUTISM, THAT PROBABLY WERE AFFECTED ALSO THE CONTIGUOUS GENES, THE GENES THAT ESTAN TO THE SIDES OF THE DISTROPHYN ARE THOSE THAT GOES TO THE BRAIN AND WHICH PROBABLY THEY WERE AFFECTED ALSO.
TO JOSHUA IT DOES NOT LIKE THEY TOUCH THAT IT, DOES NOT LIKE THEY EMBRACE THAT IT, ONLY I, ITS FATHER AND ITS BROTHERS, HE IS A LITTLE OBSESSIVE, OF SMALL WAS OBSESSIVE MAS, IN THE SCHOOL IS A LITTLE SLOW BUT IT LEARNS, IT KNOWS TO READ AND TO WRITE, TO ADD AND TO REMAIN, ALSO HAVE A PHOTOGRAPHIC MEMORY, DOES NOT HAVE PROBLEMS WITH SPELLING, IT ALWAYS KNOWS AS THE WORDS ARE WRITTEN, IT KNOWS TO USE THE COMPUTER VERY WELL, ENTERS PAGES OF GAMES, IT COPIES FILMS AND NOBODY I TEACH TO HIM, ONLY APRENDIO, NOT LIKE, ALSO WRITES IN ENGLISH, IT ONLY WRITES DOES NOT SPEAK IT, AND IT SAYS TO BREAST THIS PALABRE TO ME IS ICE, SAYS ENTRANCE HERE, ALSO PLAYS VERY WELL X-BOX, LEGOS, PUZZLE FOR THAT IS VERY GOOD FROM SMALL, IT LIKES MUCH THE PUZZLES, AND THE PLASTILINA MAKES IMPRESSIVE FIGURES WITH THE PLASTILINA., THIS IS MY SMALL JOSHUA, IT MASTER MUCH, IS THE LIGHT OF MY LIFE, I ONLY WANT TO MAKE IT EVERY DAY HAPPY AND I ONLY ASK TO HIM TO GOD THAT LETS TO ME BE TO ITS SIDE EVERY DAY OF ITS LIFE. IT EXCUSES THE TRANSLATION, LITTLE ENGLISH.
I think it is also important to point out to parents of young children that just because their son has dmd does not mean he will have cognitive issues. There is a higher incidence but they do not always go hand in hand.
Janine
Hi Dianne
My son Samuel is 5, he was first diagnosed with autism at age 3 1/2 and just few months ago with DMD. Also my younger son 3 1/2 has DMD but no autism or any delays. I think afects each child diferently, I have the same question, looks like some kids are more sensitive to the distrophyn on the brain, is just a thought.
Cristina
Dianne Carroll said: Hi Cristina,
First let me say I am sorry about both your sons diagnosis. I really never thought I would meet someone with two children with DMD and one also having Autism, and while it is nice to meet you, I am sorry to meet this way. How is Samuel doing? My younger son is in the process of many evaluations to see just what his other diagnosis will be, not Autism but maybe something like auditory processing. We have been part of Dr. Hinton's studies of boys with DMD and learining delays for several years now.
Dianne
Hi Cristina,
My son Kevin is 11 has DMD and Autism also. He was diagonosed with DMD first at age 2 the Autism diagnosis came at age 5 even though he showed symptoms before that. A lot of doctors told me that he had delays and he would outgrow them. We had testing done and he definitly has autism. My younger son age 7 has DMD and learning delays, but not autism. I also have another son age 14 and who does not have DMD or any kind of learning delays or Autism. Makes we wonder just what is caused by the DMD and what is not. How old is your son?
Dianne
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