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It's actually not that rare at all. Most DMD boys show signs of the autistic spectrum. For a while, before Nicolas was diagnosed, we thought maybe he had autism, but Dr. Wong confirmed he does not... sometimes he doesn't seem to "connect" if you know what I mean. I hope that you find more similar cases from parents who can answer your question and give you some real advice.
It's actually not that rare at all. Most DMD boys show signs of the autistic spectrum. For a while, before Nicolas was diagnosed, we thought maybe he had autism, but Dr. Wong confirmed he does not... sometimes he doesn't seem to "connect" if you know what I mean. I hope that you find more similar cases from parents who can answer your question and give you some real advice.
There is evidence to suggest that Autism and associated disorders co-occur at a greater prevalence in boys who have DMD than what is expected in the general population. A study in Massachusetts suggests the rate is significantly higher than the rate of prevalence for the general population: http://jcn.sagepub.com/cgi/content/abstract/20/10/790 Additionally PPMD hosted a Workshop in 2006 where this topic was further discussed: http://www.nmd-journal.com/article/PIIS0960896607006736/fulltext#ba... The participants in the Workshop reviewed literature, including the previously cited study, and work done by Veronica Hinton, PhD that supports the hypothesis that the rate of co-occurrence is higher.
Brian Denger
Thanks BRIAN
Do you think the autism is a consecuennse of the MD, or the autistic behaviors are related.
Looks like my other son Cristian 3 and 10 months also has Duchenne but he doesn't have any other issues like autism or developmental delays.
All this is so overwhelming, I am just trying to organize a lot of things in my head and I think trying to find an answer.
Cristina
Brian Denger said:There is evidence to suggest that Autism and associated disorders co-occur at a greater prevalence in boys who have DMD than what is expected in the general population. A study in Massachusetts suggests the rate is significantly higher than the rate of prevalence for the general population: http://jcn.sagepub.com/cgi/content/abstract/20/10/790 Additionally PPMD hosted a Workshop in 2006 where this topic was further discussed: http://www.nmd-journal.com/article/PIIS0960896607006736/fulltext#ba... The participants in the Workshop reviewed literature, including the previously cited study, and work done by Veronica Hinton, PhD that supports the hypothesis that the rate of co-occurrence is higher.
Brian Denger
My son is not autistic either but has some problems with behavior, OCD, SID (sensory Integration Disorder), ADHD, etc. My son will also repeat himself (especially the beginning of sentences) and repeat questions (like Michelle's son). He often just doesn't get everything you are saying to him so you have to take it slow. He has very slow processing. He has to really think about what he is saying sometimes and the words often come slow, He is in 2nd grade and has learning disabilities. It is due to the lack of dystrophin in the brain.. Hopefully when they find a cure or treatment for this disease it will help the brain as well. Despite my son's problems, he has some of the most endearing qualities I have ever seen in a child. He is always talking about how beautiful things are - the sky, a certain landscape, picture, etc. He is by far my most affectionate child (I have 3 others). He is always giving me lots of kisses and hugs. When he was a baby he breastfed the longest and always wanted to be held and cuddled. I love him so much despite his problems and really appreciate all his special qualities. You learn to adapt and you adjust to a lot of the quircky behaviors and it does get easier.
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