Somewhere on PPMD I found a website that provided results of patient surveys as well as information regarding clinical trials.  Does this sound familiar to anyone?  I can't for the life of me find it again.

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Hi Claire! Sounds like the site you're referring to is DuchenneConnect! For easy access, we also have the link listed on the the right side of every page on - just look under where it says "PPMD Sites."

Thank you, Stephanie.  I knew it wasn't something simple and I just couldn't remember it!  \

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