Somewhere on PPMD I found a website that provided results of patient surveys as well as information regarding clinical trials. Does this sound familiar to anyone? I can't for the life of me find it again.
Hi Claire! Sounds like the site you're referring to is DuchenneConnect! For easy access, we also have the link listed on the the right side of every page on ParentProjectMD.org - just look under where it says "PPMD Sites."