I have my 14 and 16 year old boys with the dmd and I have always taken baby steps so to speak when dealing with the different stages of this dmd. I know that my 16 year old has begun to show signs of his back muscles weakening and I know that scoliosis is beginning. I also know that around that time there is a possibility of internal muscles also weakening. My boys are pretty fatigued by the time 9pm rolls around during school days and they used to see how long they could stay up during the week ends but they are just getting more fatigued. I am concerned about this and I would just like to have other parents give advice because my husband and I have always done the most when it comes to prolonging these things and now that it seems prolonging has helped but now we are facing the inevitable (scoliosis) and I need other parents to help get me through this. My husband and I want to stay strong and pass that strength on to our children. We are going to be seeing the doctor's again and they are very helpful. I thought that maybe adding myself to this website that I could maybe explain my feelings and hopefully other moms have some good advice for dealing with this stage of my childrens dmd. Overall my boys are in good health and we haven't had any major problems with the dmd so far. They were diagnosed with aortic valve regurgitation about 2 years ago and that has greatly improved. I thank any parent that may be going thru this part of dmd to give any suggestions they may have.