There are large number of persons & families, who are carriers specially sisters of duchenne boys and mothers in rural India. There is a urgent need to provide correct information and counselling to them. Also what is more important is take care of DMD boys and make sure what is happening in research field and spread it to the rural areas. What probably is happening is that since most of us stuck by our own sons and associateed problems, coupled with our occupations, harldy we found time and resources to meet the challenges. I am seriously thinking of setting some sort of information centre in rural area and caters to the needs of rural patients and mothers/fathers. Any suggestions?

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