COQ10 pilot trial

Any views on the (latest?) COQ10 pilot trial carried out last year which was admittedly limited in its duration and was an open label trial.

http://www.distrofiamuscular.net/coq10a.pdf

In the US, compared to here in Europe, clinicians appear to be more willing to endorse the use of this supplement - I'd be interested to hear what dosages are recommended by clinicians??

cheers

Mark

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Permalink Reply by Peter on May 13, 2012 at 7:41am

Some time ago for a question on the dosage of Idebenone I received a reply:  "Idebenone - this is currently in clinical trials and still not prescribed as part of standard of care" My son is getting 300 mg per day twice daily with dishes, I can not see any adverse effects.

Permalink Reply by David on May 14, 2012 at 11:08am

Mark,

It's a bit rambling, but check out this discussion which includes many parents and many different recommendations. My son is 14, takes 900mg/day of Idebenone with now discernible side-effects.

http://community.parentprojectmd.org/forum/topics/idebenone-2

-David

Permalink Reply by Marks33 on May 15, 2012 at 5:50pm

Thanks v much for the replies. I added to the Idebenone thread at the time - still not clear what is happening with the Santera recruitment for the Phase 3 trial.

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