Thought I would respond to your spinal fusion question. No your son does not have to be able to lay all the way down with his legs flat to do the spinal fusion. In my opinion contractures are just a part of the progression and the breakdown of muscle. My son is 22 and I still range him even though he has contractures. Don't neglect the arms and hands as well, if that hasn't been mentioned to you. Swimming is a very good activity for boys/young men with DMD. My son gets in the pool once a week and loves it.