I was not able to go to the conference and am wondering if anyone who attended could provide what was said about the following:
1. ACE31 trial - when is it likely to resume?
2. Summit SMTC1100 trial - are they expecting funding and starting this year?
3. VBP15 trial - this year?
4. Any other positive news
In a way it seems to me these conferences can discourage honest communication from the trial sponsors. All year long we hear "can't say much now, but attend PPMD Conference and learn more!" and then when those conferences come around, we get the same old information.
I'll bet you $100 that when I see my clinician next month he will say "Well, World Muscle Society conference is September, I'm sure we'll learn more then". Yea, sure.
Can someone explain 1. Is Exon 51 skipping drug AVI4658 being introduced in market soon. 2. Is it being introduced in market without an extension study?
Can somebody in UK approach UCL and ask for latest updates.